Please Pray & Send Good Thoughts to Michael (disneyboy20022)

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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by disneyboy20022 »

JohnnyWeir wrote:Hey, good job with the weight loss! Maybe if you started some mild excercise you would start feeling stronger. Just small walks maybe? If your doctor thinks that would be appropriate right now of course. Also, I read earlier about how you're replacing sugar with splenda-hopefully soon you can also ween yourself of off splenda as well, because that stuffs not good for you at all. Jeez-Im acting like I'm your mother. ( and I think I'm younger than you, lol)
The weight loss however is kinda worry some though. With Ulcerative Colitis, a sign of it acting up is rapid weigh loss. I've also been having some other Colitis Symptoms which I won't go into details about out of respect for everyone's stomach on this forum. That and my stomach pain on my upper left side which has hurt in the past when something like that is acting up. So that is concerning me. I think I'll be calling that doctor tomorrow who deals with my Colitis issues.

Also My back is hurting more because I'm losing weight, and the fat on my belly that I have lost is pulling on my spine making it hurt more.

Also the ulcer on my belly that looks infected is concering me also. The last thing I want is to have an abdominal wall infection and have to be hospitalized :huh:

Also I'm not really drinking any sugar drinks at all. I do drink this which is good. It only has 2 grams of sugar. I drink of course in moderation

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I'm also going to be getting some Crystal Light Lemonade. Also I've been drinking a lot of water
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by disneyboy20022 »

The sore on my belly isn't just a scab from a boil because it never was one. My mom and I have supsicions that it is something I had 9 years ago called a pyoderma gangrenosum which is a sore caused by Immflamatory Bowel Disease. I went to the walk in clinic yesterday and they said it doesn't look like it would even drain. We called the Inflammatory Bowel doctor and he should be calling back today

I think I'm in the process of having a flare up....
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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UPDATE

I am having a flare up. It's pretty much confirmed and that my sore is indeed a Pyoderma gangrenosum which is actually and auto immune sore that happens when th. At the end of the month I'm having a Flexible Sigmoidoscopy which is best described as a Colonoscopy's cousin without getting too descriptive.

We put me on antibiotics for the Pydoerma sore, but they haven't done anything for it. Actually truth be told, antibiotics will not touch the sore due to it's not an infection at all, it's an immune system sore. It looks infected but it isn't. My doctor wants to put me on Imuran, which helps combat auto immune stuff. I was on it many years ago, then 3 years ago happened. He first wanted to check my blood work to see if it was safe to put me on it. I should know what the blood result is within a week.

Also this will be a test to see if my new GI doctor who I got a year ago can rise to the call. If not, while I was at my primary doctor today, there was a nurse who was only there one day today this week week and next week he will be a GI Physician's Assistant which is exactly what my new GI Doctor is from a year ago. I think God might have put a back up plan if my currently GI PA Doctor doesn't turn out to be so good after all

This is some info on Pydoerma Gangrenosums. I made sure to pick a link that does not have pictures.

http://emedicine.medscape.com/article/1123821-overview

This is some info on Flexible Sigmoidoscopies. Again I made sure to pick a link that didn't have any pictures

This is some info on Imuran aka Azathioprine

http://en.wikipedia.org/wiki/Azathioprine
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by Disney's Divinity »

Did your doctor say it was okay to put you on Imuran (and has the sore gone away/started to improve)? I hope you've found a doctor better than some of the past ones you've talked about before. :up:
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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Disney's Divinity wrote:Did your doctor say it was okay to put you on Imuran (and has the sore gone away/started to improve)? I hope you've found a doctor better than some of the past ones you've talked about before. :up:
I think the doctor wants to wait on the Imuran for the moment since I'm having the Flexible Sigmoidoscopy on the 31st of May. The reasoning behind it is we don't want a pill masking the symptoms or the real problem before the procedure because we want to see what is going on for sure.. My belly pain on my upper left side has increased a lot more and I'm having jolts of pain on my left side. My sore is shrinking but it still hurts. Then I'm having a few other symptoms of GI issues which I will not go into detail of in consideration of others on this forum.

Also my back is hurting again. It's interesting because in the beginning of April I was losing weight and that's when the back pain started up again. It's not as bad as it was, but I'm having an injection in June.

Also the weight loss could be contributed to the GI things. Also when my Ulcerative Colitis acts up, my immune system gets extremely weak and over reacts and a little problem suddenly becomes a big problem
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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I'm scared. My upper left side is hurting constantly. My symptoms of my Ulcerative Colitis are getting worse. It's beginning to hurt to laugh again. Also my back is getting worse again. The more weight I lose, the worse my back pain seems to get. Also my left side of my hip and back on the side where my back is hurting is very swollen. I have Physical Therapy ordred and I'll probably start that next week. Also losing a lot of weight at once is a sign of a flare up with Inflammatory Bowel Disease. On Friday I have a procedure that hopefully will give me answers of my colitis.

Also in the 5th grade I had a Plantar's Wart and it got so big that I had to have it surgically removed and afterward had a cast put on. I remember when people asked me what happened to my foot, I said I had a wart removed I got the most odd reactions and a WTF looks. That was fun :lol: .

The reason I say this is because now I have on on the other foot. Later in the week I hope to go see my doctor to get it frozen. The reason it got that bad in the 5th grade was because I picked at it. Obviously I've grown in maturity since then and will not pick at it. I also will get an over the counter thing probably later in the week because all the money I have is $2 in my bank account right now.

Keep me in your prayers.

- Michael
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by Maerj »

Get well soon!
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by DVDBuff1 »

Don't know what else to say, except I hope you recover soon Mike.
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by Disney's Divinity »

It's strange that your back pain would increase with weight loss; I wonder how they're connected. Hopefully you can get answers to most of the current pain, so you won't hurt so much. :)
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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Disney's Divinity wrote:It's strange that your back pain would increase with weight loss; I wonder how they're connected. Hopefully you can get answers to most of the current pain, so you won't hurt so much. :)

It's not as strange as you would think. The extra fat that I lose begins to sag and flop to one side. Like if I lay down on my left side it begins to hang to the left and pulls on my bones or if I'm standing up it pulls on my back more and the more weight I lose, the more fat on my body begins to just turn into extra flab. Also I do weigh a rather large amount. However 3 weeks ago I weighed at 380 and today I weighed myself on the scale and it says I weigh 350. I would like to request no one bug me about the weight amount, I do my best and also genetics plays a part as well. My point is I shouldn't have lost 30 pounds in 3 weeks even though I've been eating more carefully. Losing this amount of weight is all part of the Inflammatory Bowel. When I was in a flare up last time, I lost I went from 420 to 325 in about 4 months without trying. And while I was losing that weight, it contributed to my back getting injured in the first place. I am happy to report I never did go over 390. Also please no one lecture me about my weight. I'm eating a lot better now and was starting to do more exercises but now my back hurts again so I got to take it easy. I'm drinking a lot of water and eating fruits. My favorite fruit right now is Strawberries and am now starting to lay off all those fatty foods. The good part is I'm starting now, but I don't think I've done enough to lose 30 pounds in 3 weeks. My shorts that I wore last week are getting to big on me today. Shorts that were too small a week or two ago now fit me

Friday's the test. At least for the most part I'll be knocked out. And I'm going to start physical therapy this month with another injection on the 17th. Also I'm going to see my primary to try to get him to order an MRI since it's been since the last one was in September.
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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It's not as strange as you would think. The extra fat that I lose begins to sag and flop to one side. Like if I lay down on my left side it begins to hang to the left and pulls on my bones or if I'm standing up it pulls on my back more and the more weight I lose, the more fat on my body begins to just turn into extra flab. Also I do weigh a rather large amount. However 3 weeks ago I weighed at 380 and today I weighed myself on the scale and it says I weigh 350. I would like to request no one bug me about the weight amount, I do my best and also genetics plays a part as well. My point is I shouldn't have lost 30 pounds in 3 weeks even though I've been eating more carefully. Losing this amount of weight is all part of the Inflammatory Bowel.
I remember you saying the weight loss was connected to something before (back when you starting losing randomly), but I couldn't remember exactly what. Good luck with your test! :)
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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I misread the scale yesterday. I said that I weighed in at 350. I actually weighed in at 320. So in the beginning of April I was 400 and now I'm 320. I realize losing weight is good, but when I unnaturally lose that much weight without doing vigorous excessing, that's a problem. It's definitely my Ulcerative Colitis at work. And that would explain why my back is hurting even worse. I'm going to see a doctor who works with my primary tomorrow about my back and to see if he thinks we should order an MRI given my last one was in September 2012. I'll try to keep everyone updated when I get info.
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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Well I had the flexible sygmoidoscopy which went well. They gave me some medicine in my IV that made not care what they were doing and also a medicine so I wouldn't remember anything. They said I was talking and very chatty during the whole thing and mentioned stuff like my left side pain coming possibly from Inter Costal muscles in my ribs. I also apparently told them to take more than 2 samples from my colon because they only took two last time. I honestly forgot about that and I haven't even mentioned that to my mom and my mom didn't tell them that. Talk about your truth serum. The doctor said it looked good in there, there was a tiny bit of inflammation but not that much. He did take biopsies which are samples of the colon so they can run some tests on them which last year it was like that too but they ran tests and found colitis

Also another sign something is up is that I've been having belly aches 9 times a day taking care of business which is definitely a sign something isn't right in Ulcerative Colitis.

Earlier in the week, I stopped to see my primary to get weighed. I actually weigh 360. So that means I've lost 40 pounds without trying since April. My belly pain is greatly increasing and on top of that my back is more upset now.

My back is having some different pain than last time. I'm calling the doctor tomorrow to tell him that as perhaps he woudl want an MRI as none of us want an epidural if it's not in the spot that it would help the most as these injections aren't good to keep repeating and repeating over and over. I'm also going to start Physical Therapy again soon.

I see the GI doctor in a couple weeks and I have the injection that same week.

I'll get through this and I thank everyone for their support
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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Also my back is doing horrifically bad again. I wake up at 6 am in pain and start howling. My hip hurts like hell and I can't walk again. I plan on calling the doctor to tell him this time the pain is a little different than the time before and possibly just as painful if not worse. The Epidural is more than 2 weeks from now and I think he needs to do an MRI since this pain is different so that way when he does the injection, it will get to the most helpful spot
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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disneyboy20022 wrote:Also my back is doing horrifically bad again. I wake up at 6 am in pain and start howling. My hip hurts like hell and I can't walk again. I plan on calling the doctor to tell him this time the pain is a little different than the time before and possibly just as painful if not worse. The Epidural is more than 2 weeks from now and I think he needs to do an MRI since this pain is different so that way when he does the injection, it will get to the most helpful spot
Hopefully the pain will ease so the next two weeks won't seem so long. :(
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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Well the test results came back and nothing new. We are going to have me tested for C Diff again and another kind of medication.

Also I said on the 19th I would have another injection, however they had an opening yesterday and I went. I told the doctor that there is a differ kind of pain and he said it could be bursitis. So he gave me a steroid injection in my hip instead of my back however when we got to the main lobby off the hospital, when I got out of the wheel chair I couldn't walk at all. I almost fell and my back hurt 100 times worse. We think that the hip pain got resolved, but my herniated disc pain got jealous. We then immediately went back to the office upstairs and told the nurse and at first she said the injection may not help at first but then when I tried to get up and almost fell doing so she got concerned and I saw the doctor again. He decided to do another traditional epidural and that helped. I'll be starting physical therapy again
n
Also One reason why my blood sugars possibly could have gone up a lot is that since July to now I've had 7 (or 8 if you count the one in my hip) and those can raise blood sugars because of the medication that is in them and the steroids in general. Whether it's permanent or not I don't know. Heck it could have been the epidruals that jump started the blood sugar and maybe it's not true diabetes though for now I'll treat it like it is. Yesterday after the injection I went to my grandma's house and my blood sugar was 410. My aunt also said it was probably because of the epidurals also. I got up and drank probably 8 glasses within half an hour. My Grandma and my Aunt had faces of pure shock when they saw me drink that much water, probably because I've never drank that much in front of them ever in my life.

However the epidurals were a necessary evil, and if it I'm stuck with high blood sugars and have to watch them carefully without having trouble to walk than I'm okay with that.
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by Neal »

I know this is tough -- but my suggestion is to only drink pure fruit juice (as in the ingredients are cane sugar + pressed/squeeze juice and nothing else), water, and naturally sweetened teas.

Drinks like low-calorie sodas and crystal light (I used to be addicted to crystal light's peach tea) are sweetened artificially with corn syrups or aspartame.

The former will only cause more weight gain. The latter has been linked to cancer and brain defects.

You may think fruits & veggies are flavorless or don't taste good now, but that's because your to tongue and brain have become hardwired to love the taste or salts, oils, sugars, fats --- processed foods and artificial flavorings.

I myself am guilty of this and have my own food addictions to break. I love mayonnaise and ranch sauce way too much. There are a few burritos at Taco Bell I have practically become addicted to.

Every food corporation and fast food chain in the nation has 'food scientists' who spend their lives creating the perfect foods for addiction. They test out just the right amount of fat, just the right mouth texture, just the right hand feel, just the right color - to excite the brain and basically cause it to have a food orgasm. It's insane how much money is spent to get us addicted to their food.

And our stomachs are basically viewed as 'real estate' in a giant war for our bellies and our dollars.

But you can break this cycle and rewire your own brain.

Isn't that a wonderful thought? That you can take back control of your tastebuds, your brain chemistry - and above all - your body image?

This is a new book on the subject I suggest you read: http://www.amazon.com/Salt-Sugar-Fat-Gi ... 1400069807

I am not trying to lecture because I myself want to lose weight and often break my own promises, resolutions and disappoint myself.

But I know this much to be true -- the longer you go without eating processed, artificial 'junk' foods, the more raw foods (aka: eating the vegetable, nut, legume, herb, fruit by itself without any sauces, dips, condiments, spices) becomes an equally tasteful and exciting experience.

Our brains and tastebuds have been numbed by food science. When you begin to drink only purified water, naturally sweetened tea, pure fruit juice -- as well as raw fruits and vegetables -- all natural, organic & non-genetically modified -- you will begin to undo 20+ years of food corporations controlling your mind and mouth and begin to taste the natural sweetness and saltiness of foods. It's true. There are dozens of books and documentaries to back up what I am saying. Give it a few months and an apple will never have tasted sweeter. A raw peanut will have its own natural saltiness. You will even notice the 'sweetness' of peppers and carrots.

Only you can make a difference for yourself.

I have my own guilty pleasures - the Beefy 5-Layer buritto at Taco Bell, a tuna sandwich with gobs of mayo and handfuls of shredded cheddar, a barbecue chicken & bacon pizza dipped in ranch - these have caused me to pack on 50 pounds in 4 short years (I went to college in September 2009 at 165 lbs and today weight 210).

I am literally addicted to the fatty, salty goodness of these foods.

But the first thing I have done is acknowledge this. Now I am working to undo it. And as hard as it is - the only person in control of myself is me. I must be the change I believe in. And after working hard I have begun to surprise myself.

I used to hate tomatoes. Now I enjoy them on sandwiches and in salads. I used to hate sprouts. Now I don't. Simply replacing every can of soda with water has helped me to keep my weight down.

It is difficult, but it is doable.

So -- stick with this. You got this. You don't need sodas/pops/sugary drinks. You don't need oils, fats, cheeses, 'white sauces', salts, sugars.

The longer you go without eating these the more raw, natural products of Mother Nature will excite you. You may not believe it but it's true.

I am serious - if you stick with this, in 6 months to a year an apple can provide as much pleasure to your mouth and mind as a chocolate chip cookie. Science has proven this. The human body was designed to be fueled off of things that grow in the ground. (whether we need meat is arguable) -- anything that comes in a box, can, jar, wrapper -- those are not what our bodies really crave. You have been brainwashed by food science - we all have - but you have the power to say NO MORE! and to begin healing the damage done to your body by only indulging in raw foods, organic foods, unprocessed and unrefined foods, natural foods, non-GMO foods.

Eat your fruits, legumes, vegetables, herbs, grains, nuts -- all straight from the earth -- without added flavors. It will change your life.

Food = medicine. Your health problems are obviously more complex than this -- but eating right is more key to health than modern medicine would have you believe. When you eat your fruits and veggies, you receive all of the minerals, vitamins, fibers, and other nutrients your body needs to heal itself of the damage done by a lifetime of bad habits.

When people talk about the 'struggle' to lose weight, I do sympathize because I have fallen prey to the same bad habits. But also -- I become infuriated because it should not be a struggle. Feed yourself right and the pounds will begin to melt away. Then, begin to add in short walks every day and the process will become even more rapid. Anyone who is overweight - from ten pounds to 210 pounds too many - need only change their diet to begin a lifelong transformation for good health. No special pills needed, no expensive gym equipment, no personal trainers, no personal chefs - feed yourself correctly with what grows on trees, bushes, and in the soil - and all of your goals can become reality!

(this whole response is directed @ everyone reading -- not just you, disneyboy20022)
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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I've given up on sugary sodas, mainly drink diet soda but mostly Water. Also for some reason Strawberries are burning my tounge, which I've ate them in the past with no problem, it's just in the past couple months

I've been eating Watermelons and Apples. I'm back in physical therapy and doing new exercises which is helping my back.

Also my GI doctor said that my body might still think I have C diff even if I don't since I had it for well over a year so he gave me some stuff to help with it and it's helping

On June 17th I weighted 360. Today I weigh 349 pounds but I haven't been doing that much exercising to lose that amount of weight. It's rather odd.

Also my primary did another blood test called a Hemoglobin A1C which checks my blood sugars from the past 3 months. He might put me on insulin which scares me but I'll live through it.

He said for me to just eat serving sizes of foods specifically, but drink more water and eat lots of fruit which I've been doing. It's hard for me to adjust given my Asperger Syndrome. Also back in november there was an incident at my dad's school. Something that they had to do a take down and they said my dad delebritaly set a kid off to go into a melt down and vilolated the ADA while the real reason was after the take down he went to the school office and had an Asperger Syndrome Meltdown but blamed it on the reaction that he caused the kid to go off before my dad had a meltdown. There is some real shady stuff about him being forced into retirement, as they only interviewed the people that had bad things to say and apparently the kid is still having the behavior problem. My dad has been so miserable and I won't go into any more details. It's just been tough espcially with his paycheck being cut in half

I know he could take them to court, but then he couldn't visit the kids on his graduation and He would never be able to be in a court room. An Aspie in a courtroom being asked hard and personal questions would not have a great ending and it would be too emotional for him to do so, especially if he loses.

So that's been so hard.
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

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Well I had a fasting blood test last week and the doctor wants met to see him on Wednesday to talk about the results. My blood sugars have still been at 250 ish a day. My mom thinks I might be starting insulin. Please Pray
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Re: Please Pray & Send Good Thoughts to Michael (disneyboy20

Post by Disney's Divinity »

Good luck! :up:

And I'm sorry about your dad. :( Hopefully he can find something else he interests him at home or the neighborhood that he can cope? I know a lot of people feel incomplete when they retire (especially if they liked their job), so I'm wishing the best for him and your family.
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