Please Pray & Send Good Thoughts to Michael (disneyboy20022)

[Scarred4life]

Wow, that's great to hear! I hope things continue to go well for you

[CJ]

I'm glad you are improving, Michael. I will be keeping you in my thoughts.

[The_Iceflash]

I'm very happy to hear you're improving.

[PixarFan2006]

Nice to know your condition is improving.

Stay strong, man.

[Jack Skellington]

Hey Mike, I don't usually come back to the UD forum, and if I do I don't really post much messages anymore, but I would like you to know that I was really worried when I saw this thread.
I'm glad your ok though, and I know you will feel better soon.

[disneyboy20022]

Hey Mike, I don't usually come back to the UD forum, and if I do I don't really post much messages anymore, but I would like you to know that I was really worried when I saw this thread.
I'm glad your ok though, and I know you will feel better soon.

Thanks. I appreciate you posting your support for me.

My goal this week is to drink more water, as my blood sugar still hovers around 300ish. If I get hungry for a snack during the day, drink water.

[disneyboy20022]

My doctor increased the dose of my Diabetic Pill today. It's still hovering around 300ish. This morning before I ate it was 287 which is the lowest it's been. I'm drinking water a lot.

This is somewhat still depressing to me.

One thing that's been bugging me (no pun intended) is that my mom who is my biggest supporter in my life, has officially lost her mind.

She thinks she has mites biting her and causing her to have zings and pings of pain. One moment it's mites, one moment it's mold, then it's wolf spiders, then it's stinging catepillars. Then she said she had mold coming out of her toe. I'm afraid she has a condition known as Delisuison of Parasites. This has been going on since November and has proggresivley gotten worse. In reality she is scracthing and itching at these sores, but doesn't mentally relaize that. She saw the psychiatrist and she put her on some medicine, but she might have to be put away, which scares the hell outta me. I wish there was something I could do to make her wake up from this. Anytime we try to protest or approach her and tell her the truth she goes into a metnal fit and starts yelling and gets irate. This is something that's really disturbing me. She also thinks one of our cats has it, and one day she said a potato had the mites and brought it to the doctor. She also gathers fuzzes of dirt and says that there are bugs inside it.

This is some info on Delusions of Parasites.

http://www.sciencedaily.com/articles/d/ ... itosis.htm

It is usually diagnosed as a subtype of delusional disorder.

A related symptom involving a tactile hallucination of insects, snakes, or other vermin crawling over the skin is known as formication.

The sufferer typically reports parasites to exist under the skin, around or inside bodily openings, in the stomach or bowels and may include a belief that the parasites infest the sufferer's home, surroundings or clothing.

A person holding such a belief may approach doctors or dermatologists asking for treatment for the supposed infestation, and will often bring small particles, dust, skin flakes and other material for the doctor to inspect.

This is what has made me so depressed. I'm worried about my mom. She's helped me fight many battles and I don't want to lose her to this. I want to help her fight this battle but I don't know how except to just fake saying yes I understand. Perhaps that's the only thing I can do besides pray.....

Even though I feel like giving up after every fight and struggle I won't because of I'll get back up because my whole life I was lost and now I'm found with tomorrow having many possibilities
[youtube]http://www.youtube.com/watch?v=6Md4OKnKGfc[/youtube]

[jpanimation]

I haven't been on hear in a while and am al little alarmed to hear about your condition Michael. I pray for you and everyone in your life. From reading your posts I feel I've gotten to know you and I don't like hearing when bad stuff happens to people I know. Get better and stay strong. You've been a positive force on this website.

[PixarFan2006]

It sounds like you're going through quite a bit right now. I know how it feels about having medicine changed around. I am really hoping for the best for you and your family, Michael. Try to remain optimistic.

[DancingCrab]

You've got nothing to be ashamed of. Sadly, the world we live in has turned us all into consumers of convenient and unhealthy food habits. We've been conditioned to fear the "hard work" of eating healthy. But once you start making that transition, you discover that the hard part is simply the change. Too much have I seen friends "punish" themselves with healthy food because they feel bad for their unhealthy habits, and this ultimately leads to them just going back to the way they ate before. If you need to gradually change your habits than that's what you do. The bottom line is that you inspire yourself to eat better and just let go of any shame looming over you, because that's all pre conditioned nonsense.

Educating yourself on the internet can also be an overwhelming experience and lead to retreat. My suggestion is that you find a local nutritionist to speak to and get advice from to keep your goals and education focused.

It's amazing the power food has over our mental and physical well being. So much more than the average person ever realizes.

Stay strong, be proud of yourself and move forward

[disneyboy20022]

. If you need to gradually change your habits than that's what you do

That's what I plan on doing. If I go too far extreme at first, I'll be setting myself up for failure. I've been drinking water a lot lately, and it tastes good. I've probably drank more water in the past 2 weeks than I ever have in my life. I'm glad I didn't discover this two years ago with a crazy clinic I was at who were sad excuses for doctors in this thread

http://www.dvdizzy.com/forum/viewtopic.php?f=4&t=28830

about a month ago my doctor said to talk to my Psychiatrist because I a pill I was on can cause high blood sugars, and make me hungry and gain weight. We talked with the Psychiatrist and he took me off the pill. My weight has dropped 20 pounds in 3 weeks because of it. So that's good news. Also I haven't had a constant hungry feeling which is very good.

[DancingCrab]

That's awesome. As long as you keep up the positive attitude about yourself you are on the right path.

That's great that you are drinking more water. One trick I've learned that is great for anyone, be they beginners or not, is when you get that late night "need for a snack" feeling, to instead FIRST drink a full glass of water and wait a little bit to see if you are still hungry. A lot of times our brain signals don't communicate correctly with what our bodies are craving, and I was personally surprised to see how much this worked. Sometimes you can just be thirsty, but your brain is telling you to eat a bag of chips. Now, you may in fact be hungry, but give the glass of water thing a go first and see if it was just thirst. If not, and you are still hungry, go ahead and have a light healthy snack.

Another trick that helps is making transitions to similar types of food. Let's say I love to have a donut for breakfast, well instead of shocking my system and going straight from donuts to fruit and whole grain cereal, I'll switch over to a bagel till I feel I'm ready to start incorporating more healthy things. Find alternatives that are less unhealthy to get going, but aren't such a daunting change right off the bat.

[disneyboy20022]

My Herniated disc seems to be misbehaving. Lately I've felt like someone is prying something in my discs apart. It hurts. I go see the Pain Management next week. I have to go to a psychiatrist tomorrow which is about 2 hours away. I hope the trip doesn't hurt my back any worse. If so I might need another epidural. We'll just have to see what he wants to do.

[Disney's Divinity]

Good luck with the psychiatrist, and hopefully you can get something to help alleviate the pain when you go next week.

[disneyboy20022]

Good luck with the psychiatrist, and hopefully you can get something to help alleviate the pain when you go next week.

I think my back is just suffering from some Arthritis. I forgot I had it in my spine. Probably this odd weather is causing me some more pain. I'll be seeing the pain doctor probably now more in the middle of the month due to lack of funds to put into gas tank. The doctor is about 3 hours away from where I live. We are going that way actually more in the middle of the month so that might work because he does want to see me again this month.

I've also been having a weird dream. In my dream I go back to school, but it almost feels like I'm saying I want to return to High School but it isn't very clear. Then the other day my dad said out of the blue that I should go to the local community college to be a tech guy. Then I was talking to my girlfriend today about how Marketing works. I was describing that when a new soda comes out, it's not usually only found in the soda lane. Usually they put it in one big display to help promote it and make it stand out more so people will give it a try. It's a marketing type of technique. She said I should go to college to be in Marketing. I've always shown interest in marketing. However I'm not sure when the right time is to go to college with all of my medical crap of Ulcerative Coltis or other unseen issues yet to be discovered will derail me.

All my life it's been one thing after another after another after another. No rest between things at all. It's all so overwhelming. Each time I get done with one thing another just pops up without letting me rest. Then I'm scared of what will I do when my parents aren't around anymore. I want to live in this house, but I don't know how I would be able to do it financially. Plus I can't imagine life without my mom or dad, and I find myself wondering, what will I do without them someday......

Also I haven't told anyone anywhere about this dream and my other concerns that I addressed above. I feel more comfortable posting it here among friends, than telling my family about it for now at least.

[JohnnyWeir]

Hi Disneyboy, If you don't mind me asking: when did you first get sick? Are all of these health problems the result of a sickness that wasent treated properly at one time? If its too personal of a question I completely understand.
Anyways, that's great that you're looking in to college and that your family supports the idea. Hope your feeling okay today

[disneyboy20022]

Hi Disneyboy, If you don't mind me asking: when did you first get sick? Are all of these health problems the result of a sickness that wasent treated properly at one time?

Where do I start. Some of this I was just born with, we just didn't find out until I was in 4th or 5th grade

I was born with a Bilateral Cleft Lip and Palate which for more info on that do a Google search. I had many surgeries between being two weeks old to being 6. When I needed ear tubes I would have surgery to put them in due to I could never withstand it being awake or half knocked out. Then about when I was 8 or 9 we found out I had Asperger Syndrome, a high functioning type of autism which was about roughly 18 years ago. Back then there wasn't a lot of info on Apserger Syndrome out there as compared to now. I remember I did a yahoo search and it came up with 2 results. My parents considered the Autism idea when I was 2, but I talked so they dismissed that. Then I'd say in about 5th or 6th grade I was diagnosed with Crohn's Disease. Have had a lot of things with that which possibly most people might not ever experience. Colonoscopies, other things related to that end and stuff I won't go into because I don't want to gross people out. When I was diagnosed, I had the best Gastroenterologist until I was 18. It was at a Children's Hospital in Saint Louis MO so once I was 18 I had to go elsewhere. That's where the beginning of 8 years of crappy care with Crohn's began (pun intended) which you can read in this thread

http://www.dvdizzy.com/forum/viewtopic.php?f=4&t=28830

A year ago I started having problems from a herniated disc that haunted me from April of 2012 to January of 2013. If you want you can read the full details of that in the link above

Now recently I found out I have extremely high blood sugar problem which I am dealing with and working with my doctor on that.

My school life was very much affected by my Apsergers and Crohn's. Oh my God did we deal with some crazy teachers. The school never got the report of the Crohn's from my doctor even though we brought the papers in the office. Elementary School was rough. Specifically from 3rd to 6th, not to mention the kids but the teachers believe it or not had worse behaviors than kids. IEP meetings were always an event. I always made this noise through my fistulas on teh roof of my mouth which were there from the Cleft Lip and Palate which was kinda like a tick, the more someone said to stop, the more I did it. Unfortunately my teachers did not take that advice and led to some rather bizarre situations. Also they usually didn't like it when I took more than 5 minutes in the bathroom due to my Crohn's. One day in 6th grade, my regular special education teacher who was one of the few teachers who understood everything wasn't there. Instead another special ed teacher was, which that teacher didn't get it at all and I had her in 3rd grade and she was rude. I asked her to go to the bathroom and she said to only take 5 minutes. I told her it might be longer to which she got upset and proceded to tell me the consquenses if it did take more than 5 minutes. Alas it took 15, and she began chewing me out, then I began making my squeak through my fistulas. A lot of the time I did it when I was nervous. She kept telling me to stop, but I couldn't because I was getting too nervous. She then sent me to the assistant principal which is someone who I didn't get along with and have had problems with in the past. They decided to put me a room in the office for the rest of the day and give me 0 also. I remember my mom was going to be picking up my sister and I thought If I got to my mom she could sort this all out. I somehow managed to make myself to the front of the office, and then when it hit the time that I knew my mom would show up, I made a dash for the front of the school. After that a secretary hollered that I was escaping and 3 more secretaries and the assistant principal chased me around the school, then I came to the door and my mom pulled up. My sister's teacher had my sister at the door and told her to get in the van and told my mom to go right now. Meanwhile I'm coming out of the school crying with 3 secretaries and the assitant principal chasing me out the door and hollering to my mom don't believe a word he says. I ended up going with my mom, but the teachers insisted otherwise because they thought I was manipulating her My mom saw through that though and told them that I needed a break from them.


I seem to have a lot of those types of experiences a lot in my life, as last year in May I went to see a spine doctor and it actually had a more crazy tale which because I wouldn't choose between my mom or my girlfriend to stay in with me they sent two security guards on us. That was a fun doctor's appointment

Overall right now I'm doing better. Today I go play my hobby of Yu-Gi-Oh which I recently just got back to playing again.

[JohnnyWeir]

Thanks for taking the time to explain a bit of what you go through. The fact that you deal with all of this crap and remain optimistic really puts my own personal struggles (like depression) in perspective. You're very lucky to have what seems like a great support system in your parents, your friends here, and your girlfriend. Which reminds me-arent you guys engaged? Glad your feeling better.

[disneyboy20022]

Thanks for taking the time to explain a bit of what you go through. The fact that you deal with all of this crap and remain optimistic really puts my own personal struggles (like depression) in perspective. You're very lucky to have what seems like a great support system in your parents, your friends here, and your girlfriend. Which reminds me-arent you guys engaged? Glad your feeling better.

Yeah we are engaged. Not sure when a wedding will happen or if it will. We still have some obstacles to work on.

Also I will be going to the pain mangement on Wednesday due to my back is indeed getting worse.

I know this weight I'm about to list is alarming, so I am eating healthier than I was, so it's a process. I see the primary on Friday

At the beginning of April, I was 400 pounds. Then a week later I was 390. Another week later I was 380. Then 370, and now I'm 360.

I've been changing my eating habits, however I fear there is something else going on. I've been having my upper left side belly pain and when that has happened in the past, it's a sign my Inflammatory Bowel aka Ulcerative Coltis is acting up. Add that with the weight loss with losing 10 pounds a week and you get a possible flare up. Also since I am losing weight, it's making my back hurt more because that extra fat hanging down is pulling on my spine. This is what happened last year.

On top of that, I have an ulcer on my belly that looks infected and could turn into a Abdominal Wall Infection. Good Grief

[JohnnyWeir]

Hey, good job with the weight loss! Maybe if you started some mild excercise you would start feeling stronger. Just small walks maybe? If your doctor thinks that would be appropriate right now of course. Also, I read earlier about how you're replacing sugar with splenda-hopefully soon you can also ween yourself of off splenda as well, because that stuffs not good for you at all. Jeez-Im acting like I'm your mother. ( and I think I'm younger than you, lol)