DVDizzy Forum

Okay....I just wanted to post this because I litterally Have never been more scared than when I was 2 hours ago....in my life

I was in the bathroom and I started turning purple....and I got real cold and when my dad came to check on me he thought I was pulling a prank...I wasn't..I wish I was...but I wasn't....my mom then got my BiPAP machine that I said I hated to use and wouldn't use it before in the past put that on Me and I began to pop back to life...thankfully..

It was really the most scared I have been in all of my life....I saw what was going on...I saw my mom trying to get me to respond or move....but I litterally couldn't..I was trying to tell myself respond but when they were starting to cry I cryed when I tried to talk.....but she put my Bipap on and I began to get feeling back in me.....if it wasn't for that I'm Not so sure I'd be here right now alert or at all....I mean I know Im a christian and Heaven is paradise but I don't want to die yet...I mean when its my time its my time but i'd like to live like 70...not die at 22 almost 23 next month....so needless to Say I will be using my Bipap more often and every night and when I rest....because I know someday I will pass on from this earth and go to Heaven....but I hope my time isn't when im young


Also for the weight issue...which also probably plays a big factor on my life at risk....I've been losing weight lately...just by watching my food intake and making sure I don't eat when I'm not hungry and have been working at deciding before I eat something if the reason I want food is because im bored which If I come to that decision I won't eat then...its hard for me being autistic to tell the difference between eating jus t because im bored or whether im truly hungry but it's been easier to decide on that..which has helped me...over the summer I weighed 480.....and a few weeks ago I weighed at the doctor 438 but then it said a week later 445 and that was the last time I weighed at the doctor because im too fat to just buy a scale at wal-mart...and im fitting into clothing that use to not fit me because I was too fat....im still too fat but its not an instant thing...but I feel Im improving and lord knows I need that...

I'm glad that your mom was there to use the BiPAP on you. That's really scary. I don't know why you didn't want to use the BiPAP before (I don't know much about it- I just looked up what the machine is used for), but I hope that you'll use it in the future as needed. I mean, not being able to breathe is definitely a scary thing...

And I'm so glad that you're feeling an improvement in your health- it's definitely important to try and take care of yourself. Good luck with that- I hope you continually do improve your health, and I hope that you don't have any scary developments like this anytime soon (I mean, or ever, obviously!).

Hope you don't mind my ignorance but what happened that caused you to turn purple and nearly die?

pap64 wrote:Hope you don't mind my ignorance but what happened that caused you to turn purple and nearly die?

Well....my mom thinks I was in Vagal response while I was having a bellyache due to my Crohn's in the bathroom and I simply ran out of air....The Bipap is suppose to help me breath better....and I guess I simply ran out of steam...

Here is what a vagl nerve does in my situation

http://en.wikipedia.org/wiki/Vagus_nerve

Here is what a Bipap is and a Cpap

http://en.wikipedia.org/wiki/Positive_airway_pressure

The reason I didn't want to use my Bipap before is because it didn't feel right on me...the touchy feely part of my Autism kept me stubborn about that because I don't like things that don't feel good or sound good...and it could be as bad as a certain piece of clothing or a sound of a toy that sets me off....but it just didn't feel right....but after last night let's say I got scared straight and will now use my Bipap machine.....While I know one day i'll go to heaven when I die I am hoping I will be an old man into his 60s or 70s before that happens...

Well Im gonna hopefully see my doctor tomorrow and share with him what happened...and what we need to do along with Bipap to prevent this from happening again...My weight is probably a factor and he might mention weight loss surgery....which is something I can't do because I have seen the doctor in Saint Louis who has done many many many many many many many weight loss such as the Lap Band but he said with my crohn's not being typical crohn's I would not be a good candidate for it depsite my wieght but with my other problems such as Crohn's disease being in on my left side rather than in my right lower side and that I have a very weak immune system for someone with Crohn's disease...

And Even if I were to have the Weight Loss Surgery of some kind it woudln't happen in amonth not even two...they have you go through counseling for a year which apparently we found out isn't covered by health insurance we have at least (not to turn this political but Public Option sounds great to me and would help me in lots of ways more than you would think) and If I had it tomorow or soemthing I probably WOULD Be dead in 6 months because of the trauma of the surgery i've been told with my very weak immune system and if I caught somethign while recovering from weight loss surgery it wouldn't be pretty...trust me I know its complicated...my health is....I don't like it that its complicated...its just the way it is...and if I pretend otherwise that would be fool hardy of me and anyone else...because downplaying a serious or complicated situation doesn't make its any less complicating or less of a problem...We are all on this earth for a Reason....and If my story that is in my old computer get published someday and help even one family...its all worth it in my eyes....God Puts us here for a reason at least I believe that...and somedays its the only thing that keeps me going.....and If I lose faith....i'll lose myself in the process...and what's better someone living with a dream or losing all they know to face a brutal hopless reality.....

Although I don't have the same issues as you, I can definitely relate to a lot of this. I used to be severely asthmatic . . . one of the times I was brought into the ER the doctor told me it was a good thing I came in when I did; my bronchial constriction was so bad that I was minutes away from losing consciousness and worse . . . I could have easily died that night. And in my case, obesity was definitely a contributing factor to the severity of my attacks.

I hope you don't think I'm in any way trying to trivialize what just happened to you, I know how scary it is. But I'd like to think that these things happen for a reason, the tough times we go through only makes us more informed and stronger than ever. Perhaps, like my experience was for me, this is a wake-up call for taking better care of yourself (like using your Bipap and taking other considerations towards your health).

Even though you've already mentioned you're not a likely candidate for WLS, I hope you don't mind me throwing out my opinion on the subject. I'm obviously not a doctor, but surgery isn't the only option to lose weight, nor is it the safest. Many doctors are pushing it these days as the only permanent option (and in the process giving the false impression that it's the easiest option), but if you do your research and put your mind to it, you can make progress without it and in a much safer (not to mention much less expensive) manner.

Take care! I'm glad to hear you're doing better and I wish you luck with your health issues.

That was right on Valentine's day?!

That sounded like the scariest thing! Yes, good thing for your mom who loves you so much and knew what to do putting it on you. Both your loving parents luckily came to the rescue at the right time.

I'm glad you're using the machine now, and especially that you are still with us, and I now I do hope you lose more weight because I think not only might it prevent stuff like this...but I think it will free you more and make you even happier! And maybe you wouldn't have to use the machine anymore, too? Glad you're still with us! It did turn out to be a Happy Valentine's day after all, then!

apparently this is becoming a weekly thing....because it nearly happened again with me stop breathing and similair to last week...keep me in your thoughts and/or prayers...I see the dr on march 11th...

That's terrible. Can't you get into the doctor sooner than that? It sounds like you need urgent medical attention.

Luke is right. You need to go to the doctor immediately. You don't know when this might happen again and maybe next time it will be fatal. Everyone here at UD is good friends with you here. We don't want you to pass and to be gone because you are our friend. And we don't want to lose a friend over this. You need to go to the doctor. Maybe he can help and you might start getting better.You always need to go to the doctor. My brother is constantly sick and one time he had to go to the emergency room because we took to long to get him to the doctor. We are just saying get to the doctor sooner for your and our sake

Luke wrote:That's terrible. Can't you get into the doctor sooner than that? It sounds like you need urgent medical attention.

Trust me I would if I was able to...and also there really is nothing the doctor can do or give me a magic cure...my mom has told me this and she being a nurse knows stuff...Unfortunatley because I have a very complicated medical situation besides this new occurance....it's basically that nerve thing that is short circuiting...im sure when I see teh doctor he might want me to get a heart test EKG done and I will..and to be safe I am not staying home by myself..and I will have a phone to call for emergency should it happen in public... and this doctor is the best one i've seen in years its ust... that he's on a personal leave for 2 weeks starting this week...and thats also why I am going to be resting a lot to keep conserve my energy until I see the Doctor....

Just keep me in your thoughts and/or prayers....and i'll keep you updated....on whether I get into the Doctor sooner like maybe his trip fell through

I'll pray for you, and you make sure you take care of yourself, use your machine a lot, as much as you need to, and don't tire yourself out, and do everything you can to stay healthy until you see that Dr.!

I have been paying attention to this thread, it's just a lot of times I really don't know what to post that would be comforting. I know it must be terrifying. But I do hope things don't get more serious for you, and that things go right and you get out of this bad situation alright.

Disney's Divinity wrote:I have been paying attention to this thread, it's just a lot of times I really don't know what to post that would be comforting. I know it must be terrifying. But I do hope things don't get more serious for you, and that things go right and you get out of this bad situation alright.

It's okay...sometimes comforting someone doesn't need lots of words...just a person saying hang in there....it doesn't fix the problem itself.....but it gives me hope that things will work out and to not ever give up..

I've felt the same as Disney's Divinity. And if all it takes to comfort is to say "just hang in there," then you just hang right in there, Buddy! Everyone on this forum thinks you're awesome! Don't even think of giving up!

That's awful - I can't imagine how scary it must be to get those kinds of random attacks. And also having to go through that on multiple occasions, just awful. I've seen this thread for quite some time now, but I never know how to react to such news. Afraid to just repeat stuff that people have already said. And I haven't been on this forum for a very long time, so the posibility of everybody going "Who is that" does also not really help you.

But if it helps, I definitely think you're awesome too. I'm not that good in comforting people, but one thing I can do is keep you in my thoughts. And I will revisit this thread for updates. Hang in there. UD <3 you.

Hang in there, disneyboy! We all think you're a great guy around here, so don't give up! (I pretty much said what everyone's been saying around here).